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5.1
Irish NCPE rejects funding for Friedreich’s ataxia treatment due to cost-benefit analysis
Irish IndependentLO·IE·2 days ago
The Irish Health Service Executive (HSE) is convening to determine the funding and availability of Skyclarys for patients with Friedreich's ataxia. The outcome remains uncertain, as the decision hinges on cost-effectiveness assessments and budgetary constraints for rare disease treatments.